Ms. Alice Cruz, UN Special Rapporteur on The Elimination of Discrimination Against Persons Affected by Leprosy and Their Family Members

Ms. Alice Cruz, Special Rapporteur on the elimination of discrimination against persons affected by leprosy and their family membersMs. Cruz is External Professor at the Law School of University Andina Simón Bolívar – Ecuador. Her doctoral work in sociology focuses on the biosocial dimensions of leprosy and identifies, in countries where leprosy is an endemic neglected disease and in countries where it is an imported and rare disease, the different barriers to access to early diagnosis and to high quality care by persons affected by leprosy, as well as their social, economic, family and personal life conditions. She has worked with the Brazilian non-profit organization Movement for the Reintegration of Persons Affected by Hansen disease (MORHAN), where she was involved in the organization of the First International Symposium on Leprosy and Human Rights (Rio de Janeiro, 2012). Ms. Cruz participated in the elaboration of WHO Guidelines for Strengthening Participation of Persons Affected by Leprosy in Leprosy Services. She served as a member of the International Leprosy Association’s Council (2014-2016). Ms. Cruz has conducted fieldwork in Portugal, Brazil, South Africa, Bolivia (Plurinational State of) and Ecuador, and has researched and written on the subject of eliminating leprosy and the stigma attached to it. She has interacted with various stakeholders including public health professionals, medical doctors, civil society as well as persons affected by leprosy.

SORCE:https://www.ohchr.org/EN/Issues/Leprosy/Pages/AliceCruz.aspx

BAHASA INDONESIA

Ms. Alice Cruz, Pelapor Khusus PBB tentang penghapusan diskriminasi terhadap orang-orang yang terkena kusta dan anggota keluarga mereka

Ms. Alice Cruz, Pelapor Khusus tentang penghapusan diskriminasi terhadap orang-orang yang terkena kusta dan anggota keluarga mereka. Cruz adalah Profesor Luar di Sekolah Hukum Universitas Andina Simón Bolívar – Ekuador. Pekerjaan doktornya dalam sosiologi berfokus pada dimensi kusta sosial dan mengidentifikasi, di negara-negara di mana kusta adalah penyakit yang terabaikan endemik dan di negara-negara di mana itu adalah penyakit impor dan langka, hambatan yang berbeda untuk akses ke diagnosis dini dan perawatan berkualitas tinggi oleh orang yang terkena kusta, serta kondisi sosial, ekonomi, keluarga, dan kehidupan pribadi mereka. Dia telah bekerja dengan Gerakan organisasi nirlaba Brasil untuk Reintegrasi Orang-Orang Yang Terkena Penyakit Hansen (MORHAN), di mana dia terlibat dalam organisasi Simposium Internasional Pertama tentang Kusta dan Hak Asasi Manusia (Rio de Janeiro, 2012). Ms. Cruz berpartisipasi dalam penjabaran Panduan WHO untuk Memperkuat Partisipasi Orang Yang Terkena Dampak Kusta dalam Pelayanan Kusta. Dia melayani sebagai anggota dari International Leprosy Association’s Council (2014-2016). Ms. Cruz telah melakukan kerja lapangan di Portugal, Brasil, Afrika Selatan, Bolivia (Negara Plurinasional) dan Ekuador, dan telah meneliti dan menulis tentang masalah menghilangkan kusta dan stigma yang melekat padanya. Dia telah berinteraksi dengan berbagai pemangku kepentingan termasuk profesional kesehatan masyarakat, dokter, masyarakat sipil serta orang-orang yang terkena kusta.

 

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